It has been some time since I posted. I have been torn on
what to share for fear of not coming across clear and possibly miss stating the
issues. But here goes. So… Since getting the diagnosis of MTHFR….
There are several other genetic defects that my WoNdErFuL NP
and I are working on. Each time something starts to slip health wise I go back
and we move forward with the next process.
Some facts/new info~
1. My body does not release toxins- Had all my amalgam
fillings removed 2 weeks ago. All 11!!!! Have no idea if it will help but my
brain does seem a bit clearer. Could be some other factors though.
2. I can’t detoxify estrogen. Yeah,… great for the
girl who has been on birth control ( estrogen) for the last 25 years. So that
was immediately changed
3.
Compromised anti-oxidant defense
4.
Sub optimal vitamin D status
5.
There is a substantial overlap between high
folate foods and high Sulphur foods. Since the MTHFR means I can not process
folate I removed the foods that have them ( limiting my foods even more)
6.
Histamine intolerance means limiting foods that
release or allow the release of histamine in the body ( insert eye roll- more
foods I can/should not eat)
7.
Changing the above = not 1 migraine in 4 months.
4 MONTHS!!!! I sleep through the night.
Real sleep. Good sleep. I wake up to an alarm for the first time in my life.
Off anti-depressants. I never needed them. My issues were from the inability to
methylate B12. I am recovering from workouts like a normal person. Yes, yes I
am not training like I used to but I am lifting a lot and only having the usual
amount of muscle soreness after. I DNFed at my 1st mt bike race BUT I didn't fall asleep for days afterwards. This is actually REALLY big news!!
Crazy. Absolutely fucking crazy.
I had been feeling
great for 2 straight weeks. Was finally getting a 1-2 hour workout in 6X a week
and decided to celebrate with a GF pizza from my favorite place. That was
Friday night. I slept for 30 hours after that. I could not move. Verdict- GF
Pizza dough was enriched with folic acid and B12 like many grain/carb type
foods (even GF) are. No more pizza unless I make my own dough.
The good thing though was after the 30 hours I was back to
normal. Just a month ago this kind of episode could last for days.
Workouts are coming along. Running 3-4 times a week. Mt
biking 3-4 times a week. Lifting 3 times a week and spin class 2 X a week.
Fingers crossed this crazy new way of eating and incredible amount of vitamins ( methylated
B12, Methylfolte, Multi Vitamins that support the last 2, Thytropin PMG,
Thyroid medication and Pregnenolone, Methylcobalamin liquid shots ) continue to
move things in the right direction. Hopefully that right direction also includes weight loss. I have not been able to budge even 1 pound since March. The good news is the weight gain seems to have subsided but still.... It is SO frustrating to be this size and KNOW that I am actually doing everything I can. Trying to let that go has proven to be the MOST difficult part of this whole journey. Especially as a triathlete. Just before this all happened i was at the lowest weight I had been in my life and it was hard as hell. Every ounce lost was a huge battle. It always has been. Unfortunately all these genetic/health issues in combination with hypo-hypothyroidism means I may need to find a way to be OK with it. There is a VERY high chance that my weight will never go down again. That means if there is an Ironman in my future again... it is going to be one hell of a fight. Heavy=slower. And I already wasn't the fastest.
I was scared to death to think that I may never be able to
do another Ironman but I am super
hopeful that possibly with the help of a coach that understands all this, that
will happen again. Next year J
Fingers and Toes crossed!!! It has been a long 2+ years of dealing with this
downward spiral since Ironman Texas when I was free basing B12 shots because I
was so exhausted all the time. Crazy to think that someone who eats healthy,
doesn’t drink or smoke and works out all the time can have all this going on.
The “good for you” foods and vitamins I had been eating thinking that they can only help
were actually super harmful. Removing foods like kale, spinach, eggs, asparagus,
legumes, broccoli, garlic, onions, arugula have definitely helped me feel better. I AM NOT SAYING that
everyone should do this. Talk to a Dr.
Have the tests run, Have a genetic test done. Be your own advocate for the
health care answers you deserve. It is hard as hell and very very upsetting
because you will meet 100 people/Dr’s who say nothing is wrong before you will
find the 1 who listens and agrees….something Just.Isn’t.RIGHT!!
This isn’t a “please praise me or pity me” post. This is
solely to get the message out to others ( especially women) who feel like crap
all the time and don’t know why. I really want others who feel like I used to
to feel better. I can’t say it enough. Get a genetic test done and go to a Dr (
or NP- I will never go to another Dr again)
Who wants to help not
just medicate or mask the symptoms.
Thanks for sharing Heidi - you are an incredibly strong chick!!
ReplyDelete